Notices by WearyBonnie (3tomatoesshort@disabled.social)

Visual snow syndrome given 'monumental' diagnosis code by World Health Organisation

https://www.abc.net.au/news/2025-03-08/visual-snow-syndrome-diagnosis-code-who/105004228

> Steve Gillis spent months trying to find answers to the "constant companions" of tinnitus, brain fog and visual disturbances that followed him after he had recovered from a virus. Now there are hopes others with visual snow syndrome will face an easier path to diagnosis.

I have just learnt that rats' ears go pinker when they're happy so now every time my cursed ears are red and angry and pissing me off, I will think of happy rats with pink ears and maybe feel slightly better? 🥰🐀

@Infoseepage
😅 I must be confusing you with someone else then, sorry! I am terrible at remembering who is who, online 🙃
@croissant

@croissant
I definitely saw someone post a sceptical thread on one of those studies.. it might have been @Infoseepage ?

@eniko
Yup, I added my preferred respirator as I figured anyone looking for that kind of info will be able to infer a lot from the fact that I have a strong preference 😁

God I can't tell you how good it feels when I see someone who looks really cool and who I want to follow and I can see immediately in their profile that they're not a willing plague spreader, so I don't have to scroll through their images trying to work it out for myself. Ahhhh so good 😍

I have a hard time trusting people who (in public at least) only ever say positive and uplifting things about being chronically ill. I get that a positive mindset is a really big deal for some people, and it's good that it helps, but I suspect it feeds into the common abled perception that anyone who's struggling is just not being positive enough or not trying hard enough. I think we should talk about the really shitty parts of chronic illness in public, too.

People who share their joy in doing a thing without trying to make you feel bad for not doing the thing, or insisting that everyone can do the thing, are so wonderful to follow. I love seeing your pickled vegetables and your mended clothes and your hand crafted electronic doodads and the photos you took on your hike and the interesting new way that you cycled today 😍

But I am le tired

@Heliograph
Does it help if I add: well have a nap.. zen fire ze missiles!!!
😁

@Heliograph
I think it was called "the end of the world", not completely sure though

*resets the Days Since Abled Nonsense sign to 0*

Disabled person: this thing happened to me
Abled stranger: I don't think that really happened because it would be in breach of regulations

🫠
Right. No one ever breaches regulations, anywhere 🫠🫠

Pals if anyone knows of any Australian companies who completely genuinely fully support 100% remote employment and who may be in the market for a grizzly old greybeard software architect, lmk 🙏🏻
I know Atlassian seems to be onboard with fully remote, any other recommendations very welcome!
#GetFediHired

Fellow Aussies, have you heard of Yarn'n toilet paper??
It's made in Australia, 100% recycled, 50% of profits goes to First Nations Education programs, and it's Indigenous owned!
https://yarnn.au/

So much crip tax lately in the form of delivery fees 😔

34 degrees today, absolutely get fucked Perth 😭
It's my birthday this weekend and I DEMAND RAIN 😤

If you don't believe that covid infection can cause permanent disability then would you please send me all the peer-reviewed studies you've found which detail clinical trials which led to 100% remission of POTS symptoms in 95+% of participants - I need to know if I'm missing any proven, effective treatments 🙏🏻

Literally no one with ME/CFS has ever been like "actually it's no big deal, I wouldn't have done anything to prevent this condition if I could have, chill out, you won't mind joining this club at all!"

Fucking public health officials, on the other hand 🙃

The bad ones do not care about public health, AT ALL. They do not care if you spend the rest of your life in bed, unemployed, and impoverished.

If covid lockdowns helped some kids realise there were options in life aside from going to school every day and being made miserable as a result, and they didn't want to go back to school after the lockdown, THE LOCKDOWN WASN'T THE FUCKING PROBLEM, WAS IT??

@MediaActivist
😭 I'm so sorry, that's awful. I thought it was bad enough here but that's so much worse :(