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   Miakoda (hellomiakoda@pdx.social)'s status on Friday, 28-Nov-2025 12:19:03 JST Miakoda

   I'm pretty miserable. I feel like crap, I have no energy at all. My roommates are still pissed. They have mistaken, AGAIN, my failures to communicate my needs as indication I don't have needs. They insist the caregiver is unnecessary. I spent the majority of my life basically n squaler as things simply went not done. I hate admitting that, but it's the truth. I can't articulate why I can't just do the things. ...and having a new person each week now, can't convey what's needed.

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Friday, 28-Nov-2025 12:24:11 JST Miakoda

     in reply to

     I don't see a way to fix this. As usual, the fix is "fuck whatever Koda needs". That's been my entire life. You'd think I'd be used to it and give up by now.

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Friday, 28-Nov-2025 12:25:51 JST Miakoda

     in reply to

     How do I explain things to people very attached to their very incorrect understanding of the situation?
     I envy the other two autists in the house. They seem to be holding things together on their own... which kinda highlights how bad I'm doing at this.

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Friday, 28-Nov-2025 12:59:56 JST Miakoda

     in reply to

     • Bebadefabo

     @bebadefabo It's the two allists I'm butting heads with.

   • Embed this notice
     Bebadefabo (bebadefabo@mastodon.social)'s status on Friday, 28-Nov-2025 12:59:57 JST Bebadefabo

     in reply to

     @hellomiakoda everyone's Neurospice is different. Some have that spice that plays well with others or doesn't over stim in big social situations... That's not me.

     It's not our job to correct their misunderstanding of the situation. Let them white knuckle thru reality however they are comfortable. Just try to keep yourself comfortable(ish) and polite as possible until it's time to retreat.

     I bailed later than expected this year, but will be in full hermit mode for many days to recalibrate

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Friday, 28-Nov-2025 18:48:03 JST Miakoda

     in reply to

     • SpaceLifeForm

     @SpaceLifeForm I've never had covid

   • Embed this notice
     SpaceLifeForm (spacelifeform@infosec.exchange)'s status on Friday, 28-Nov-2025 18:48:04 JST SpaceLifeForm

     in reply to

     @hellomiakoda

     Sounds like long covid.

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Saturday, 29-Nov-2025 11:20:04 JST Miakoda

     in reply to

     • Green Roc Thoughts

     @GreenRoc I keep struggling to communicate. Nobody is willing to acknowledge I'm struggling with this.

   • Embed this notice
     Green Roc Thoughts (greenroc@mastodon.social)'s status on Saturday, 29-Nov-2025 11:20:05 JST Green Roc Thoughts

     in reply to

     @hellomiakoda smh... I have certified level 2 social interaction, with no intellectual impairment. Level 2 is significant enough to need a care giving service to help me communicate.

     If only you could ignore the roommies existence.

   • Embed this notice
     Green Roc Thoughts (greenroc@mastodon.social)'s status on Sunday, 30-Nov-2025 02:33:54 JST Green Roc Thoughts

     in reply to

     @hellomiakoda My carers changed every week with new caregiving provider, so I fired em.

     Every week, they get lost before they find my door, would park in the wrong spot, and everyone doesnt know where the laundry room is. One of em said the #1 thing to not say to me "Calm down".

     I cant feel safe with a new person every week. I have STRONG relate to your situation.

     I need sameness. I need to not have to go outside.

     I acknowledge your struggle with solidarity + my stories.
     Feel free to share.

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 30-Nov-2025 02:33:54 JST Miakoda

     in reply to

     • Green Roc Thoughts

     @GreenRoc Supposedly, the one that was here last week is going to be the usual until my other one finally gets back. My roommates are willfully not understanding that "you don't need her here that long" because "she's not doing anything for quite a bit of it" is because it takes me a while to get used to someone so I can communicate with them, and trust them enough to let them in my room - which is currently trashed. If I cut those hours, it's a battle to get them back.

   • Embed this notice
     Green Roc Thoughts (greenroc@mastodon.social)'s status on Sunday, 30-Nov-2025 02:33:55 JST Green Roc Thoughts

     in reply to

     @hellomiakoda :(

     Sadness.
     What a shame, saddens me they just dont get it.
     :sadness:

   • Embed this notice
     Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 30-Nov-2025 02:40:33 JST Miakoda

     in reply to

     • Green Roc Thoughts

     @GreenRoc If I did that, I'd be homeless real fast

   • Embed this notice
     Green Roc Thoughts (greenroc@mastodon.social)'s status on Sunday, 30-Nov-2025 02:40:34 JST Green Roc Thoughts

     in reply to

     @hellomiakoda My brain imagines, you showing this previous toot to them, saying in a firm voice.... "She is just like me! I am just like her! Can you not get it? Are you that numb? Or you just dont give a crap.

     Assholes, the lot of you"

     My brain is angry and compassionate for your situation. You shouldn't have to put up with their consideration constipation.

   • Embed this notice
     Green Roc Thoughts (greenroc@mastodon.social)'s status on Sunday, 30-Nov-2025 02:45:42 JST Green Roc Thoughts

     in reply to

     @hellomiakoda "it takes me a while to get used to someone so I can communicate with them" Ditto.

     Trust takes time too

     I told the caregving boss, that I like about three of them so far out of the ssix, but the last one was again, new to me, and didnt wear a mask, told me to "calm down" So I, in an emotions raging high, said, they are all fired.

     Three out of five, I said I can like the three, a new one came like wtf, can they not read the notes they said to wear a mask, let themselves in, fck.