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why? what's in there?
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@BowsacNoodle @deprecated_ii people's personal health data, probably.
There was a time when people understood the right to privacy, especially relating to personal health data, was important. Some people who date from that time are still living
ie it's the same reason that it's probably not good if the government of china has your DNA from 23&me -- whether you have hemeroids or are predisposed to gastric cancer shouldn't be anyone's business especially if you're reporting it to a vaccine database to help ensure that vaccines that you took are safe and aren't causing either.
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@jeffcliff @deprecated_ii I see no issue with that in and of itself, but because that's not stated as a reason in this snapshot I'm assuming that's not the case.
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@deprecated_ii @jeffcliff >everyone who works with sensitive data knows not to do so
I mean they should, but I have seen some really bad garbage. I'm sure you have too.
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@jeffcliff @BowsacNoodle then they're totally incompetent. there's absolutely no need to store information that directly identifies the patient in such a database and everyone who works with sensitive data knows not to do so
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@BowsacNoodle @jeffcliff most real world database touchers are incompetent in my experience
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@deprecated_ii @jeffcliff Yes. I was taught to remove extra data, reduce access to what's needed, limit scope and availability (who and what they can see), and masking or truncate when you can't mask. For some reason, a lot of people feel totally fine putting unsalted bank account and social security numbers in a database when it doesn't need to be there, and it's not masked in any capacity. I think healthcare would have problems in particular because the core of meta analysis is looking at all of the extra info that was included in patient records to try and extrapolate an additional study/record. It's almost backwards from normal world because future research benefits from you hoarding as much as possible.