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   Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:36 JST Quinn Norton

   I tried a new medication Wednesday night and I'm still not ok. I have so, so many packs of drugs from which one or two pills are missing.

   At least I've gone from 15 hours of sleep to just the room slowly tilting as I try to walk.

   • Embed this notice
     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:29 JST Quinn Norton

     in reply to

     OTOH, I should be thankful for the gift of desperation. It is, in many ways, the best gift to have.

     Evan Prodromou repeated this.
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     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:30 JST Quinn Norton

     in reply to

     If you have sleep problems you can solve with behavioral interventions and you don't, I'm sorry, I kind of hate you for it. I shouldn't, I'm just flawed this way.

     People who recreationally have mental and physical illnesses are just super upsetting for me.

     Evan Prodromou repeated this.
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     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:32 JST Quinn Norton

     in reply to

     I do appreciate that he starts everyone with sleep hygiene, as annoying as it is for someone who already knows and practices sleep hygiene, and that he dropped that shit and talked drugs with me at once when he saw my data. i honestly would far prefer to have a non-pharmaceutical answer. but for now, if i want more then 4 hours, it's trazodone. ...except you maybe can't get it in france, so that's fun.

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     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:33 JST Quinn Norton

     in reply to

     some evidence of central apnea, but subclinical, some evidence of restless leg *in deep sleep only* but subclinical, woke up too much, got a lot of deep sleep in a way consistent with insomnia etc.

     he suggested another lab might help, if i was more used to the environment i might sleep longer. I told him I didn't think that would work, because I'm a night owl and the lab ends with a 6am wake up time. he saw my point.

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     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:34 JST Quinn Norton

     in reply to

     Funny thing with this sleep neuro, he was very big on sleep CBT, suggested that horrible sleep book etc etc etc, then when my study came in he dropped all that hot nonsense and just talked shop with me. btw, that study was inconclusive because *drum roll*

     ...I didn't sleep long enough ?

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     Quinn Norton (quinn@social.circl.lu)'s status on Friday, 17-Mar-2023 23:16:35 JST Quinn Norton

     in reply to

     ok, i should probably not worry everyone so: the disorder in question is insomnia, and has been since I was young. i have only had benefit really from one drug ever, which is trazodone.

     but after a sleep study that found basically subclinical central apnea, the sleep neurologist thought it could be caused by the trazodone, and that it might be useful to look for something else. he tried a tricyclic, half dose. I am not good with tricyclics. Still, it turns out.

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     Evan Prodromou (evan@prodromou.pub)'s status on Friday, 17-Mar-2023 23:17:58 JST Evan Prodromou

     in reply to

     @quinn I kind of prefer the gift of absolutely zero problems but OK

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     Evan Prodromou (evan@prodromou.pub)'s status on Friday, 17-Mar-2023 23:21:41 JST Evan Prodromou

     in reply to

     @quinn But to your other point: as someone who has a physical issue that can be controlled with behaviour change (I struggle with being overweight), I can say pretty conclusively that in practice it's really hard, even when you know what to do and why it is important.

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     Evan Prodromou (evan@prodromou.pub)'s status on Sunday, 19-Mar-2023 04:24:18 JST Evan Prodromou

     in reply to

     @quinn Clearer! Thanks.

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     Quinn Norton (quinn@social.circl.lu)'s status on Sunday, 19-Mar-2023 04:24:19 JST Quinn Norton

     in reply to

     • Evan Prodromou

     @evan mostly the behavioral changes for sleep gains are nothing like the behavioral change for weight loss, and i'd never draw the equivalence. evolution pushes us towards food in ways that are hell to manage. but pushing away from sleep basically requires technology use. I know I'm simplifying, but if you're not sleeping because you game all night, do not tell me you know my struggle. that will, and has, annoyed me.