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Notices by AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)

  1. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Thursday, 17-Apr-2025 06:12:22 JST AndrewGiffordphotography AndrewGiffordphotography

    From ThereForME:

    "If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you."

    https://docs.google.com/forms/d/e/1FAIpQLSelDC00Dul6_PiiBEZrAPHgG0HFdp8x9YtpBw9LwFGmIOkhJQ/viewform

    #pwME #MECFS #LongCovid #ThereForME #Welfare #PIP #DWP #DisabilityBenefits

    In conversation about 2 months ago from mastodon.social permalink

    Attachments

    1. Domain not in remote thumbnail source whitelist: lh5.googleusercontent.com
      The new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFS
      This survey is for individuals with Long Covid (LC) or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) who are receiving benefits affected by the government's proposed reforms. If the person is too unwell to complete the survey, a carer, if possible, is welcome to fill it out on their behalf. It is intended for residents of England, Northern Ireland and Wales only. Scotland has a different benefits system and requires a different survey - which we will publish as soon as possible. This survey was made in collaboration with Long Covid Support, Action for ME, ME Local Network and #ThereForME to understand the impact of the government’s proposed disability welfare reforms. Your responses will support our advocacy to the government for benefits that better support people living with these conditions. The survey has 31 questions, but not all may apply to you. We know this is a lot for people with ME/CFS and Long Covid. Each one has been carefully designed to give us meaningful data that strengthens our advocacy. Please take as much time as you need. Every question in this survey is completely optional, meaning you don't have to respond to specific questions if you don't want to. If you're signed into a Google account, your progress will be saved for 30 days so you can return to it later. By completing the survey, you are giving your consent for your anonymised responses to be used in advocacy and research communications by the following organisations: Long Covid Support, Action for ME, ME Local Network and #ThereForME. No identifying information will be shared, and all data will be handled in line with data protection best practices. Privacy Policy - Action for ME Privacy Policy - Long Covid Support If you're able to complete the survey by 24th April 2025, your responses can be included in a briefing we’re preparing for MPs. The final deadline for completing the survey is 30th May 2025, which allows us time to analyse all responses and incorporate the insights into our organisational submission to the Green Paper consultation. Regretfully, we are not able to provide and/or receive paper copies of this survey, due to the timescales involved. Thank you so much for your time and energy. This survey has been endorsed by the following organisations: Bury and Bolton ME/CFS & Fibromyalgia Support Group, ForwardME, Hope 4 ME Fibro Northern Ireland, Keyworker Petition U.K., Long Covid Advocacy, Long Covid Kids, Long Covid SOS, MERC PAG, Physios for ME and Supporting Healthcare Heroes UK, #MEActionUK, 25% ME Group, ME Association
  2. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Tuesday, 24-Dec-2024 04:29:21 JST AndrewGiffordphotography AndrewGiffordphotography

    The pup found and chewed up a very fun toy!

    In conversation about 5 months ago from mastodon.social permalink

    Attachments


    1. https://files.mastodon.social/media_attachments/files/113/703/778/360/880/176/original/9322289f16fedb39.jpeg
  3. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Friday, 20-Dec-2024 17:53:00 JST AndrewGiffordphotography AndrewGiffordphotography

    Health on a shelf!

    Season's greetings, from ME/CFS past and present.

    In conversation about 5 months ago from mastodon.social permalink
  4. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Monday, 30-Oct-2023 23:46:29 JST AndrewGiffordphotography AndrewGiffordphotography
    in reply to
    • Garry Knight

    @garry Hey Garry, please forgive my ignorance, but I wondered if i could ask; what's the benefit of having Lists - e.g. might one use case be a grouping of people I follow, brought together for a common attribute/interest/theme/etc.? Many thanks!

    In conversation Monday, 30-Oct-2023 23:46:29 JST from mastodon.social permalink
  5. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Monday, 30-Oct-2023 23:46:27 JST AndrewGiffordphotography AndrewGiffordphotography
    in reply to
    • Garry Knight

    @garry Thanks Garry, that's just the ticket!

    In conversation Monday, 30-Oct-2023 23:46:27 JST from gnusocial.jp permalink
  6. Embed this notice
    AndrewGiffordphotography (andrewgiffordphotography@mastodon.social)'s status on Sunday, 29-Oct-2023 18:51:22 JST AndrewGiffordphotography AndrewGiffordphotography

    My first impression is that it seems Mastodon hasn't been built with photography in mind. Very low res. No auto resizing, makes uploading a faff. Can't view an image full screen. This feels restrictive. How are others getting by with this I wonder? #photography

    In conversation Sunday, 29-Oct-2023 18:51:22 JST from mastodon.social permalink

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