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  1. Embed this notice
    Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 14:58:25 JST Miakoda Miakoda

    Every time I hear about autism in the news, I just end up angrier and angrier how much shit is said about autism, and autistic people, by allistic people.
    I really do not trusts allists to know what the fuck they're talking about in this topic and I really wish all of them would sit the fuck down. Perhaps they can spend their time counting how many allists take Tylenol.

    #ActuallyAutistic

    In conversation about 7 days ago from pdx.social permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:07:30 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts Very much so, but I've been hearing dumb shit about autism long before dictator Trump showed up. Hell, misinfo/disinfo is why it took so damn long to figure out I'm autistic.

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 15:07:31 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to

      @hellomiakoda
      .
      I mean, they start this public shit about one percent of the population, trans people, Autistics - while ICE is out there going after 50% of the people

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:17:56 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts For starters - For the longest time, the only reference image of autism I was given was extreme level 3s. While they have just as much value as everyone else, the vast majority don't fit that particular manifestation. I obviously don't fit there, so I spent the majority of my life having ruled that out - much to my detriment. I'm still a bit bitter about it, if I'm honest.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:21:36 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts There is a huge amount of suffering I could have avoided or mitigated if I had accurate information, and it feels like that info was withheld intentionally. I'm not yet over it. I feel like a large portion of my life was stolen.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:22:27 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts What is Thalidomide?

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 15:22:28 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to

      @hellomiakoda
      .
      right, I see that. My story has another step, I guess, I'm old enough that nobody probably knew from Autism, last of the boomers - but they never told me I was a Thalidomide baby, what deformities I knew about, I never heard anything about a cause for, plus there were less obvious problems.
      .
      The point is that if I had known I was in that tiny minority, I would have at least heard the world, "Autism," at some point. There's a lot of brain problems with Thalidomide, and like they do, they called it, "Autism," so I would have found the ideas.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:24:45 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts God that word was thrown around a lot in the 90s.

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 15:24:46 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to

      @hellomiakoda
      .
      💜
      same. I really want to reclaim the R-word, like they did, "queer," because I was lied to and never got a single accommodation, never once got let off the hook for anything, I just had to catch up and keep up. I was an R-word, goddammit, gimme a break.💜

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:28:51 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts I have an online friend who had an autism joke as a screen name and avatar for the entire time I knew him. Once I told him I'm autistic, suddenly, quietly, it changed to just his face and name. LoL. I've never once said anything about it, I just quietly let him figure out how dumb his joke was. 🤣️

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 15:28:52 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to

      @hellomiakoda
      .
      I swear, now they say "Autism," every time instead

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:32:17 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts It was literally the next day his stupid joke vanish from my contact list, replaced by his normal identity. 🤣️ I thought to myself "Yeah, maybe don't do that", LoL

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 15:37:16 JST Miakoda Miakoda
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts For context - His joke was "High functioning Acoustic", and the avatar was a stereotypically mentally disabled person's face image edited in to a guitar.

      In case he happens to read this thread - Yes, I did see that, and yes, it did reflect negatively on you. Glad to see you realized you should remove it.

      In conversation about 7 days ago permalink

      Attachments


    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 16:13:59 JST Miakoda Miakoda
      in reply to
      • tuban_muzuru

      @tuban_muzuru Same! I don't know where I'd be at if the #ActuallyAutistic crowd on here hadn't been so welcoming. ❤️

      In conversation about 7 days ago permalink
    • Embed this notice
      tuban_muzuru (tuban_muzuru@beige.party)'s status on Sunday, 23-Nov-2025 16:14:01 JST tuban_muzuru tuban_muzuru
      in reply to

      @hellomiakoda

      I've learned quite a bit about autism here on Masto. Corrected a host of misperceptions.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 17:46:46 JST Miakoda Miakoda
      in reply to
      • lizzzzard
      • Goiterzan/Amygdalai Lama

      @lizzard @punishmenthurts About only choosing where we go -
      My father was overtly racist, homophobic, ablism, all the bigoted ists and ics.
      ...I didn't accept any of the messaging, and anything I didn't realize was bigoted (words, for example), I scrapped as soon as I learned their meaning.

      Your post brought that to mind, felt like sharing it.

      In conversation about 7 days ago permalink
    • Embed this notice
      lizzzzard (lizzard@social.tchncs.de)'s status on Sunday, 23-Nov-2025 17:46:48 JST lizzzzard lizzzzard
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts @hellomiakoda No need to be ashamed for family members. We don't get to choose where we come from, only where we go. And even there, starting conditions matter.

      It's just that, as a mother, I have no understanding whatsoever how you can't talk about this with your child for whom it is obviously life-changing information. None.

      Being so concerned with keeping face and protecting your own ego that they'd rather hurt their own offspring than admit a mistake - one that they probably didn't even know was a mistake at the time!

      This is a pattern I see in abundance in the post-war generations, and it's probably just a human thing... But I do not get it. I mean I get that admitting errors is hard and egos are brittle. But within a family we should do better.

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 17:46:49 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to
      • lizzzzard

      @lizzard @hellomiakoda
      .
      seriously, Mom and Dad both gone, I kissed Mom's ass on her way out no less, and my favourite sibling accidentally let it slip out, probably from COVID brain when I'm in my early sixties, just a few years ago now, like Mom told somebody, just not me.
      .
      Hillbilly shit, I'm so ashamed. 💜
      Thank you.

      In conversation about 7 days ago permalink
    • Embed this notice
      Goiterzan/Amygdalai Lama (punishmenthurts@autistics.life)'s status on Sunday, 23-Nov-2025 17:46:50 JST Goiterzan/Amygdalai Lama Goiterzan/Amygdalai Lama
      in reply to

      @hellomiakoda
      .
      EDITED - got the name very wrong, it's this one.
      .
      the model they are trying to say Tylenol is, but real. Flipper babies and whatnot. I think in England it's "Contergan," or something.

      In conversation about 7 days ago permalink
    • Embed this notice
      lizzzzard (lizzard@social.tchncs.de)'s status on Sunday, 23-Nov-2025 17:46:50 JST lizzzzard lizzzzard
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts @hellomiakoda and your parents didn't tell you?! Seriously? ... People. 😮💨

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 17:48:43 JST Miakoda Miakoda
      in reply to
      • lizzzzard
      • Goiterzan/Amygdalai Lama

      @lizzard @punishmenthurts Just a note to parents who may have been shitty in the past - if you and them are still alive, it's not too late to do better.
      It would do me a lot of good if my mother would just admit to the abuse she inflicted. I'm not looking for her to atone, or fix, or make up for it. Just admit it was wrong. That alone would mean so much. She never will though.

      In conversation about 7 days ago permalink
    • Embed this notice
      lizzzzard (lizzard@social.tchncs.de)'s status on Sunday, 23-Nov-2025 17:48:45 JST lizzzzard lizzzzard
      in reply to
      • Goiterzan/Amygdalai Lama

      @punishmenthurts @hellomiakoda I see a few parents around me bringing up their kids with honesty about their own mistakes weaknesses, and boundaries, and it gives me hope for the next generation at least. I am convinced it makes the children grow up as healthier and happier people.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 17:53:48 JST Miakoda Miakoda
      in reply to
      • lizzzzard
      • Goiterzan/Amygdalai Lama

      @lizzard @punishmenthurts I know she follows me around the internet. I can recognize her patterns.
      So in case she happens to read this - if your intent is to make that admission, consider it an exception to no-contact. I know you know dozens of accounts to send it on, pick any of them.

      Oh, and surprise, I'm autistic and recognize your patterns at a glance.

      In conversation about 7 days ago permalink
    • Embed this notice
      Miakoda (hellomiakoda@pdx.social)'s status on Sunday, 23-Nov-2025 18:01:17 JST Miakoda Miakoda
      in reply to
      • lizzzzard
      • Goiterzan/Amygdalai Lama

      @lizzard @punishmenthurts Side note - this is why it's unwise to stalk an autist. They know. They definitely know.

      In conversation about 7 days ago permalink

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