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  1. Embed this notice
    HebrideanHecate (hebrideanhecate@spinster.xyz)'s status on Friday, 07-Feb-2025 01:27:02 JST HebrideanHecate HebrideanHecate

    😱

    https://www.bbc.co.uk/news/articles/cyv41644j6go

    The family of a boy living with motor neurone disease have said it was a "massive shock" for him to be diagnosed at the age of 13.

    Kyle Sieniawski, from Pontypridd, Rhondda Cynon Taf, started to lose mobility in his left arm last year before experiencing other neurological symptoms.

    Almost a year after she first noticed the symptoms, Kyle's mum told BBC Radio Wales Breakfast that his conditions had deteriorated to a point where he can no longer feed himself.

    Motor neurone disease is an uncommon condition that mainly affects people in their 60s and 70s.

    In conversation about 4 months ago from spinster.xyz permalink

    Attachments


    • Embed this notice
      @polarisera reposted your post (polarisera@spinster.xyz)'s status on Friday, 07-Feb-2025 01:27:01 JST @polarisera reposted your post @polarisera reposted your post
      in reply to
      • Lady Bexington

      @Ladyfat @HebrideanHecate What ever could have changed? What novel therapy has been rolled out without any over-sight?

      In conversation about 4 months ago permalink
      KeepTakingTheSoma likes this.
    • Embed this notice
      Lady Bexington (ladyfat@spinster.xyz)'s status on Friday, 07-Feb-2025 01:27:02 JST Lady Bexington Lady Bexington
      in reply to

      @HebrideanHecate Why is this so prevalent now???

      In conversation about 4 months ago permalink
      KeepTakingTheSoma likes this.
    • Embed this notice
      KeepTakingTheSoma (keeptakingthesoma@spinster.xyz)'s status on Friday, 07-Feb-2025 01:28:26 JST KeepTakingTheSoma KeepTakingTheSoma
      in reply to
      • @polarisera reposted your post
      • Lady Bexington
      @polarisera @Ladyfat @HebrideanHecate It's a mystery, but my money's on White Supremacy or Climate Change.
      In conversation about 4 months ago permalink

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