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  1. Embed this notice
    AvonLovesBlake (lilysea@aus.social)'s status on Monday, 29-Jul-2024 22:40:35 JST AvonLovesBlake AvonLovesBlake
    • WearyBonnie

    @3TomatoesShort So if a tilt table test showed no blood pressure drop,

    but standing up makes someone feel sick/exhausted/like their legs are going to buckle underneath them and they're going to collapse

    and walking is significantly LESS bad than standing still,

    that could be POTS

    but not OI?

    In conversation about 11 months ago from aus.social permalink
    • Embed this notice
      Dr Ro Smith (rhube@wandering.shop)'s status on Monday, 29-Jul-2024 22:40:35 JST Dr Ro Smith Dr Ro Smith
      in reply to
      • WearyBonnie

      @Lilysea @3TomatoesShort to me, dizziness is what I really associate with POTS, the rest could 'just' be ME/CFS. But either way, I have heard that both the tilt table and standing test are unreliable, and 'failing'it doesn't necessarily mean anything. I was told the tilt table test wasn't worth doing. I did the standing test and only had the required results on the third day, which tracks as my symptoms were much stronger. I was advised that if you have a diagnosis for something else it's not>

      In conversation about 11 months ago permalink

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