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   CJ Bellwether (siege@octodon.social)'s status on Tuesday, 18-Jun-2024 20:40:26 JST CJ Bellwether

   I came out as trans because i have EDS. I didnt know i have EDS. then i met trans people with EDS. Then i figured out i have EDS. Then i learnt i have EDS because im trans.

   The symptoms i was noticing was actually making me really worried - i had these tons of little red dots increasingly appearing all over my body and then suddenly lumps under my skin. y'know scary things you wouldnt bother to put into a search engine.

   the doctors shrugged said eh that just happens and told me to go away, several symptoms, yeah sure ok thats weird but you seem ok go away.

   then a doctor was like oh also your body is basically destroying itself and youve likely got a finite amount of life left.

   so said fuck it if im gonna going down fighting im doing it with tits and my girlfriend said its 5am, what are you on about.

   so i came out i transitioned, i met other trans people, and they were like oh hey same lumpy hat! and then someone else was like oh same autoimmune hat! and on and on and it was like oh wait, tons of trans people have these hats, a lot more hat wearers than cis people, all this stuff is interconnected through whatever this one point of me is.

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     CJ Bellwether (siege@octodon.social)'s status on Tuesday, 18-Jun-2024 20:52:28 JST CJ Bellwether

     in reply to

     anyway i just think its always cool to me that theres this ever expanding levels of "same hat!" going on with the concept of trans community.

     Its not just shared connections along gender issues, its not just shared follow on behavioural and mental traits that stem back to those gender issues, but theres also weird shared stuff thats affecting the body at the cellular level.

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     CJ Bellwether (siege@octodon.social)'s status on Tuesday, 18-Jun-2024 20:55:41 JST CJ Bellwether

     in reply to

     • 'i am no man' Charlotte Eowyn!

     @CharlotteEowyn thank you! its having its ups and downs at the moment (my body) but in truth its been such an effect on my entire life so its given me time and chances to look more at things around me and appreciate stuff. without any of it i think i could have easily missed life.

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     'i am no man' Charlotte Eowyn! (charlotteeowyn@chaosfem.tw)'s status on Tuesday, 18-Jun-2024 20:55:43 JST 'i am no man' Charlotte Eowyn!

     in reply to

     @siege this is probably trite, but you seem like such a cool and fascinating person from your social media profile and I'm sorry to hear about your health problems.

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     CJ Bellwether (siege@octodon.social)'s status on Tuesday, 18-Jun-2024 21:04:54 JST CJ Bellwether

     in reply to

     like i really want to just grab a doctor or two who are experts in autoimmune or connective tissue stuff and walk them into a bar during trans pride.

     Because its like its just not medically mathmatically possible that you have this many people all with "rare" conditions that are like 5 in 100,000 or 1 in 5000 meeting up where the reason they're meeting up is because they're all part of a section of society that makes up like 0.1% of the population.

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     Zoonie 🇪🇺 (zoonie@octodon.social)'s status on Tuesday, 18-Jun-2024 23:14:33 JST Zoonie 🇪🇺

     in reply to

     @siege but the question is what would be the consequences of that knowledge?
     Would we stretchy tissue folk with lupus... -
     -Want to be cured?
     -fear being 'cured'?
     -Would the doc's suddenly interested in building cheap gene identifying kits be doing that for 'good' reasons? (nope)
     -Cut to 150 yrs in to the future, and gene therapy available as a result of Gilead doctors experimentation, with a view to stamping out LGBT folk...

     I think, on balance, it remaining folk knowledge for the time being is probably a good thing.
     (Discuss)