Notices by Valerie Roney (vlrny@disabled.social)

Things I feel a disproportionate amount of satisfaction and pride for:
- using up all the ink in a pen
- wearing out a pair of pyjama pants
- catching up on all my mastondon @'s

I am (un)happy to report the system is fekkin useless, 6 different orgs, 0 boots on the ground help, 0 financial support.🙄
And yet I persist..
Need $600 for last of moving costs.
And need ~$500/mo to cover hired help so I stop floundering and have free spoons to put my life back together, and build https://turtlebower.org/ to stabilize #housing for myself and other #spoonies
Every lil bit helps. 💞
https://ko-fi.com/valerie7173
Or DM for etrans.

I'm getting shit done this morning and my brain is cheering me on by putting the A-Team theme song in my head. 💪🎶

Leonard Cohen would like to remind you:

There is a crack in everything; that's how the light gets in.

You guys!

I just walked past an IKEA delivery van and it:
1) was electric
2) had a *soft* beep beep backup noise that doesn't penetrate yer skull from a block away
3) made a magical lil dingle ✨ noise when the engine turned off

There really is a better way.

#hopePunk

The spoonie assistant I had lined up fell through. So looking again to hire someone with executive function and a driver's license to help me:

• Move - pack, organize and decide set up new place.
• Grocery shop, food prep, life management at home.
• Accompanying on appts so I don't get lost and confused when mentally spent.
• Life admin - filling out forms, phone calls (visual/auditory processing issues)

$20/hr 5-10hr/wk #Guelph
Boosts appreciated.
Need help asap.
#fediHire

Ok, so, I have about a $2k gap between what my life costs and what ODSP pays. My family was filling that gap, but now they don't wanna. 🙄

I'm not as sick as I was, so have some spoons to work on closing that gap but am going into debt in the meantime.

I've started a ko-fi to help raise funds, esp for extras (like new headphones). You can help with:
1) boosts
2) $ 👉 https://ko-fi.com/valerie7173
3) advice on how to zhuzh up my ko-fi to make it more engaging.
Danka!

Oof. So, I finally found the VISA bill from getting through latest fekkin crisis and I'm $1,400 in the hole.
There's lots to sort yet, but I am at least spiralling up rather than down finally.
I know everybody's struggling, it's hard to ask, but if you can spare some coin it's deeply appreciated to help me stabilize.
And as always, boosts appreciated, that's help too. 💞

https://ko-fi.com/valerie7173
Or DM me for etrans.
#mutualAid

Ok mah trunkies! I continue to struggle with language (terrible at replies, sorry!) but we've got a new @LonelinessCorps group to repopulate so spread the word!

Today I can help by being a connector. If yer #newHere or just need to shake up some silos and find cool new folks to follow, tag #findYourPeople as well as #lonelinessCorps and group and I'll boost all dat!

Share a bit about yerself, nerdy hobbies, "I wish I had more __ in my feed." Whatever lil niche you seek, let's find yer people!

@mayintoronto
I literally said: "Ug, people are just shit; it's exhausting," out loud. But then walked by this.
Society redeemed! 🌟
#randomActsOfJoy #utterBloodySilliness

Sigh... Of the many stupid things I have to deal with while I try and re-stabilize my life, today's is having lost access to the shared Netflix account.

Have set up my own now at least, but would deeply appreciate anybody kicking in with a kofi subscription to help cover the costs.

Even four ppl at $5/mo would do it.
https://ko-fi.com/valerie7173

☝️for context, I obviously have lots of other massive way more complicated and expensive problems. But I can't get my head around any of that today.

This seems like a small solvable thing I can then lean on to reach the bigger things.

Appreciate the boosts, as I understand lots of people can't even solve their own small solvable things. Boosts are love and care too.

The reaching out helps keep me from collapsing inwards. I learned that from watching you lot. 💙✨

#mutualAid #cultureOfKindess

My #fuckitFriday - found a use for those fekkin useless foam shape inserts in sports bras, door stop! 🧠

@lonelinesscorps

Found some notes I made from last mtg w functional medicine doc. Sharing a couple things on #gerd if anybody doesn't already have it on their radar:

1) digestive enzymes

2) using vagal nervous system tricks to trigger "rest and digest"

Anybody has ability to expound on either of these *waves arm expansively* invitation to infodump on this thread...

#spoonies #teamSpoonie #spoonieTips #longCovid

I am still looking to hire a Person-Friday to help with a myriad of adulting and life management stuff to help get my life out of the weeds. Guelph area. See linked toot thread below.

Temperament more important than specific skills. If you're got a driver's license and executive function and are grounded, kind, pragmatic, or know someone who is, boop me.

Boost appreciated.

Danka!

https://disabled.social/@vlrny/115052360476181384

#guelph #GuelphOntario #kitchenerWaterloo #CambridgeON #fediHire

I propose a new tag:
#fuckitFriday where we share whatever stupid social norm we are abandoning because it is stupid and makes our lives harder.
And fuckit to any narrative that keeps us down.
And fuckit to pretending to be ok when things are not ok.
And fuckit to whatever else you've been carrying you'd like to let go of.
And so on...
Whatcha got, denizens of fediland? I got two middle fingers all ready to go!
cc @lonelinesscorps
#startAConversation

Exploratory toot:
Adjacent to #turtleBower planning locally, people from other areas are also starting to scheme collective/shared housing. Co-living for lil niche groups like spoonies or neurodivergents.
I wonder about a #getFediHoused tag or something as a marketplace for folks looking to start something up, or find roommates, share resources, find local connections, etc.

Chime in if you have ideas!
#coliving #housing #intentionalCommunity #sharedHousing

I think I found the portal to the not-awful timeline. Who's coming?

In #spoonieTown there's a troupe of roving tinkerers who will come by and help you fix things, or sell you a toaster or something from the 70's they've repaired and will be good for decades to come.

Everybody is just done with buying garbage that needs to be replaced all the time.

Shoutout to #repairCafe folks who already make this a reality.

Sigh...

Bad news: I am in crisis again.

Good news: Who wants a job?

Looking for somebody with executive function and a driver's license with the ability to bring some grounding kindness to a burned out autistic trying to get her blazing dumpster fire back down to a smolder.

Need help with all sorts of adulting, my cog is just fried. Pretty flex just need extra brains and body.
Pay $20/hr 5-10hr/wk.
#Guelph area

Boosts appreciated.