Notices by Valerie Roney (vlrny@disabled.social)

Autistics (and other noise sensitive fedizens) of Canada!

I need help finding a good quality fan to set in the frame of a window 20" high and 14" wide.

Needs to be decent for dB/noise. Push a fair amount of air (venting out a hot room to draw AC air in) , multi speed would be useful, and able to reverse direction or flip around easily for cool nights.

Would deeply appreciate:
- links for online ordering in Canada
- or brand recommendations
- or shops in #Guelph I can walk in and buy.

We're getting eggs with our CSA box this summer, from "very free range chickens" apparently.

Which got me pondering what kinda life *very* free ranging chickens might live.

I've decided it is probably a motorcycle gang.

Please reply with good names for said gang. 🐔🏴☠️

Ok, real talk here folks.
If you're watching the world fall apart and feeling helpless, lost as to any meaningful action you could take, especially with your own limitations...

👉 Check in with your neighbours. Reach out into your community. And I mean frickin REACH.

Every chronically ill, marginalized, disabled, housing insecure person I know is floundering. Mostly invisibly. We're exhausted. It takes so much energy to articulate a need, and too often... 🦗

We need community.

🧵

@nev @TVOntario
Good article. Good recommendations:

•Protect human rights by progressively realizing the right to an adequate standard of living.

•Address systemic causes of poverty for marginalized communities.

•Ensure income supports are adequate to afford housing.

End shelter benefit clawbacks for unhoused recipients.

Expand deeply affordable housing supply to match the scale of need.

Confront systemic discrimination in housing and employment.

@nev @TVOntario
I would also like to add, while most disabled people are not able to work, we are a walking economic stimulus package.

Do you have any idea how many people I would employ if given enough resources to take care of myself? Pharmacists, food services, physical therapists, psychologists, home supports, transportation....

A high tide floats all boats. Support disabled people and lift the whole fekkin economy up too.

#disabilityJustice #ONpoli #CDNpoli #CANpoli

Can anybody reach the dial for the gravity?
It's too damn high, I canna get off the couch.

#readThisTootThenBreathe

I'm out on the balcony, it's a mild windless day with high overcast cloud. It feels like a big soft comforter thrown over the whole world. Softening sound and holding a space for stillness.
Take a breath and join me, we can #sitTogether

I woke up in the middle of the night and said aloud to myself:

Just because you can't control the ocean doesn't mean you don't steer the boat.

...so if anybody else needed to hear that today, the void says hi.

@kedara hrm... Thanks. I just don't understand the point of them them. Why would you not just follow the tag itself?
Unless this is something to aggregate across various fedi platforms. 🤔

@lmgenealogy this makes my heart go pitter patter.
*breaks into song*
🎶I believe the children are out future... 🎶🥲

I had people step back and hold a door open for me three different times today. THREE!

In case anybody needed their faith in humanity redeemed.

The kindness and caring is out there, it's just not the stuff that makes the news.

#randomActsOfKindness

I posit everything is better with googly eyes. Send me your favourites eyeball surprises.
[edit: forgot to say, if you alt text it, I can boost it]
#randomActsOfJoy
#utterBloodySilliness

Not to brag, total brag, but I have survived the week.

Booya! 💪✨

If you also have survived the week, feel welcome to brag as well.

At this point I think I have to just shift and plan for this kind of brain for a while. I'm struggling with how to stay connected on here, this community really matters to me, but the frustrations in finding windows of language to respond to replies, to not be able to engage in discussions and banter are making it feel like a burden not a joy (to clarify, the obstacles in my brain are a burden, not the lovely thoughts and comments from you lot).

So Feb was pretty awful as my cognition and language unravelled. I lost most of my reading comprehension and visual processing, and was just straight up mute for good stretches of time. Also BOO, very boo.

But it did illuminate I still have active inflamation in my brain the steroids were helping. YAY?

I have been a couple of weeks on a more appropriate dose and starting to feeling better, but the language stuff is still a struggle. Frustratingly so. Definitely BOO.

Ok rambly (because pfft executive function) update on my life, my health, and my brain, for anybody following that, and maybe a query for feedback, suggestions, commiseration.

The end of Jan I switched from prednisone to hydrocortisone, which was a huge YAY as it turns out I was quite sick from the side effects of the prednisone (lots of brain/autonomic nervous system stuff).

But we undershot the conversion by about 1/3 and I crashed horribly. BOO.

So the question becomes, how do I stay connected, mostly sans language, on a mostly text based platform.

I don't know which parts of my brain are the obstacles at this point, I have more access to language (w limited stamina), but I think there are executive function things like initiative and decision making that just kill conversation and engagement capacity for me. Weird. And frustrating. And isolating.

*invitation to infodump*

Am interested in anybody's thoughts on what appears to be acquired ADD from long covid on top of the autism. My brain OT observed: losing a capacity in general PLUS losing the capacity in whatever part of my brain compensated for the autism wiring is a double whammy. I have to learn a whole new human interaction protocol, with a different brain.

Some of that will be hacks, but some of it will just be adjusting expectations, and maybe leaning into being more quirky.

aaaaand #irony wins the week.

#mood