@atomicpoet Maybe give #Hylo a try as well. It doesn't federate yet, but they might add that in the future, and it IS open source.
Notices by LaPingvino 🟙 :ir: (lapingvino@neurodifferent.me)
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LaPingvino 🟙 :ir: (lapingvino@neurodifferent.me)'s status on Monday, 08-May-2023 02:30:03 JST LaPingvino 🟙 :ir: -
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LaPingvino 🟙 :ir: (lapingvino@neurodifferent.me)'s status on Sunday, 04-Dec-2022 10:49:01 JST LaPingvino 🟙 :ir: @autismsupsoc in my case the pros clearly outweigh the cons. There are always consequences for what you do, and you should follow the information you have to make the right choice. What you did here was to impart fear on people, which while the intention is noble, is not what I wish to anyone. What I suggest you do instead is word these things as "according to my knowledge in (country you know for certain about) and anecdotally for (many) other countries, please check, this is the case and can be bad for you". This gives us agency instead of fear, and new relevant information to work with. We cannot fight a debilitating system with debilitating fearful information. We should work on improving our agency instead, which is the full reason I reacted like this in the first place. I really appreciate the effort and the intent, but I try to improve the situation for everyone, which means more exact and correct information instead of hand waving and extrapolating. You taught me a lot, and I hope to see AT LEAST one country where it applies in future posts, while you can ADD that other countries probably have the same, because I had to derive from unflattering experience about Americans extending their experience to the world that this applies to the US and technically I'm still none the wiser, because you didn't even confirm or deny that.
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LaPingvino 🟙 :ir: (lapingvino@neurodifferent.me)'s status on Sunday, 04-Dec-2022 10:48:55 JST LaPingvino 🟙 :ir: @autismsupsoc It would probably be less than ideal to have a registration of my autism in american systems... In the Netherlands and in Portugal it's mostly a note in medical history and something I mention, there is not really any kind of diagnosis registry, just an overview of relevant medical information subject to privacy laws like the GDPR, and as such legally obligatory to not save longer than necessary. As such while discrimination can exist through the EU, because of this privacy law it's very hard to get these issues over all of the EU. Anglophone countries don't have any law system close to that and as such it's good to be warned about these risks.
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LaPingvino 🟙 :ir: (lapingvino@neurodifferent.me)'s status on Sunday, 04-Dec-2022 10:48:55 JST LaPingvino 🟙 :ir: @autismsupsoc I just liked and boosted the post that indicated the lists in US states. That is clear and relevant information. I learned about these horrors today. About my own diagnosis, I WISH there were something even close to that because to get my medication I need to basically repeat my doctor's visits in every new country. Now I know it's probably good that when I went to the US, I considered it too expensive to visit a doctor and got my meds mailed in instead...