it’s amazing for how long i’ve normalized coughing up blood as part of endo or “random ulcers”
Notices by kinoko ? (kinoko@raru.re), page 3
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:11 JST kinoko ? -
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:10 JST kinoko ? I was also tested for gluten intolerance and it came back negative
I’m SO RELIEVED because i love pasta, foccacia, ciabatta, pastries… life would be way bleaker without it all
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:09 JST kinoko ? - chronic fatigue at 9/10
- CT scan done
- MRI next week
- rapdily losing weight :blobcatPensive: -
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:07 JST kinoko ? doing slightly better, still sleeping like shit because of pain and i can’t take painkillers anymore, but various meds are keeping me functioning throughout the day. sometimes i even go for a walk or get to study. that’s not too bad.
going for an MRI tomorrow. all of my organs will be ultra-scanned
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:06 JST kinoko ? the CT scan came back saying i don’t have cancer so that’s good at least… don’t know about the MRI yet but I’m also going to a gastroentrologist before I’ll finally meet the endo surgeon, so I guess we’re trying to exclude non-endo causes as much as possible. it sucks because adhesions and surface endo is NOT visible on MRI, ultrasound or CT, and the only way to diagnose and excise it is via laporascopic surgery, so all hope lies currently on one surgeon I haven’t even met yet
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kinoko ? (kinoko@raru.re)'s status on Tuesday, 19-Sep-2023 08:57:05 JST kinoko ? I’ve been to the gastroentrologist now and the consensus is that at least I don’t have any tumors anywhere that would change the shape of the organs, but my pain is very non-typical for gastric issues, nevertheless she will perform a colonoscopy next week and I’ll be meeting my endo surgeon too.
I had some better days where I actually enjoyed life and had maybe 5/10 pain most of the time and started believing I could get back to work, but my period or whatever this is came back and now I’m in 10/10 ”please kill me, my insides are trying to kill me” pain for two days. Just trying to numb it any way I can to fall asleep.
And my blood serum results came back, with ”possible autoimmune disease”. :/
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kinoko ? (kinoko@raru.re)'s status on Sunday, 17-Sep-2023 05:37:04 JST kinoko ? boys eating big burgs and doing construction work ate all the tofu and said it’s really good :blobcatPuffyMelt:
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kinoko ? (kinoko@raru.re)'s status on Sunday, 17-Sep-2023 01:14:14 JST kinoko ? comfy
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kinoko ? (kinoko@raru.re)'s status on Sunday, 17-Sep-2023 01:11:10 JST kinoko ? walk time
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kinoko ? (kinoko@raru.re)'s status on Sunday, 17-Sep-2023 00:20:00 JST kinoko ? grilled tofu and zucchini marinated in tamari and maple syrup
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kinoko ? (kinoko@raru.re)'s status on Friday, 15-Sep-2023 19:11:43 JST kinoko ? doctor time
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kinoko ? (kinoko@raru.re)'s status on Wednesday, 13-Sep-2023 03:54:24 JST kinoko ? @Moon i just realized that the mating season’s extended from spring-summer to spring-autumn due to climate change because it’s still warm instead of being cold and gloomy
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kinoko ? (kinoko@raru.re)'s status on Wednesday, 13-Sep-2023 03:34:24 JST kinoko ? @Moon they’re rando strangers walking up to me which somehow makes it worse
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kinoko ? (kinoko@raru.re)'s status on Wednesday, 13-Sep-2023 03:03:39 JST kinoko ? why are old men hitting on me
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kinoko ? (kinoko@raru.re)'s status on Monday, 11-Sep-2023 21:26:55 JST kinoko ? My grandpa programmed and downloaded movies and books via torrents even when he was 86 so I don’t think it’s an age thing, it’s kind of like she never thought it’s worthwhile to understand so she focused on other things. However, I can tell that it’s going to be really overwhelming for her to start programming without knowing what it means to e.g write to a text file via a script, or how to search for things properly, even how to use the internet securely. If there’s something like “computers/your OS for dummies” and someone has experience with it, I’d be grateful.
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kinoko ? (kinoko@raru.re)'s status on Monday, 11-Sep-2023 21:12:48 JST kinoko ? My mum wants to learn programming as a hobby, but she’s very computer illiterate and while I think Automating The Boring Stuff With Python could be a great book for her, I’d like her to learn what files are in her OS, what does OS even mean, what is a browser and how it works, what are programs and what is a terminal interface, how to search for things properly on the internet, how to distinguish fake news and info from legitimate, how email works, etc without too many technical details. She doesn’t know what any of this means and I’m afraid that it’s going to be a stumbling block. I know that libraries probably offer something like this but she definitely wouldn’t attend a course, so it needs to be a book or an online course.
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kinoko ? (kinoko@raru.re)'s status on Monday, 11-Sep-2023 21:12:46 JST kinoko ? She’s a scientist but she’s somehow managed to only use Word, Excel and SPSS, her work email of 20 years, doesn’t use the phone for anything but calling or messaging and doesn’t know how to close apps and things in her phone. I’m sure the programming aspect would be fine, but she really has to learn how various things work in her computer as well. Of course, I would also teach her, but it would be great if there’s something to get her started.
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kinoko ? (kinoko@raru.re)'s status on Monday, 11-Sep-2023 07:58:16 JST kinoko ? @lain he’s living the programmer’s dream (climb trees for money and write software as a hobby)
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kinoko ? (kinoko@raru.re)'s status on Sunday, 10-Sep-2023 05:13:15 JST kinoko ? culmination
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kinoko ? (kinoko@raru.re)'s status on Sunday, 10-Sep-2023 01:08:46 JST kinoko ? today’s walk :blobcatPuffyMelt: