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<blockquote style="position: relative; padding-left: 55px;"><section><a href="https://masto.ai/users/meduza_en/statuses/114219586797001640">Meduza in English (meduza_en@masto.ai)'s status on Tuesday, 25-Mar-2025 06:54:06 JST</a><a href="https://masto.ai/@meduza_en" title="meduza_en@masto.ai"><img src="https://gnusocial.jp/avatar/78503-48-20231024180342.webp" width="48" height="48" alt="Meduza in English" style="position: absolute; left: 0; top: 0;">Meduza in English</a></section><article><p>Russia forcibly switched children with cystic fibrosis to a treatment that’s never been tested on humans — one that’s supplied by a company with ties to Putin’s friends. The effects, parents say, were immediate and catastrophic.<br><a href="https://meduza.io/en/feature/2025/03/25/children-shouldn-t-pay-the-price-for-political-games" rel="nofollow noreferrer">https://meduza.io/en/feature/2025/03/25/children-shouldn-t-pay-the-price-for-political-games</a></p></article><footer><a rel="bookmark" href="https://gnusocial.jp/conversation/4786406#notice-9376178">In conversation</a><time datetime="2025-03-25T06:54:06+09:00" title="Tuesday, 25-Mar-2025 06:54:06 JST">about 15 days ago</time> <span>from <span><a href="https://masto.ai/@meduza_en/114219586797001640" rel="external" title="Sent from masto.ai via ActivityPub">masto.ai</a></span></span><a href="https://masto.ai/@meduza_en/114219586797001640">permalink</a><h4>Attachments</h4><ol><li><article><header><div>Domain not in remote thumbnail source whitelist: meduza.io</div><h5><a href="https://meduza.io/en/feature/2025/03/25/children-shouldn-t-pay-the-price-for-political-games">Kids pay the price as Russia swaps proven cystic fibrosis drug for untested one</a></h5><div></div></header><div>In January, Russia forcibly switched children with cystic fibrosis from a proven U.S.-made drug to a “new” treatment that’s never been tested on humans — one that’s supplied by a company with ties to friends of President Vladimir Putin. The reported effects were both immediate and catastrophic: parents say children prescribed the drug are deteriorating even faster than when the disease is left untreated. But doctors are reportedly refusing to document the side effects due to “orders from above.” The independent outlet Okno spoke with parents of cystic fibrosis patients in Russia to understand the impact of the switch — and found that officials are now threatening families for refusing the untested medication. Meduza shares an abridged translation of their report.</div><footer></footer></article></li></ol></footer></blockquote>

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Meduza in English (meduza_en@masto.ai)'s status on Tuesday, 25-Mar-2025 06:54:06 JST Meduza in English
Russia forcibly switched children with cystic fibrosis to a treatment that’s never been tested on humans — one that’s supplied by a company with ties to Putin’s friends. The effects, parents say, were immediate and catastrophic.
https://meduza.io/en/feature/2025/03/25/children-shouldn-t-pay-the-price-for-political-games
In conversationabout 15 days ago from masto.aipermalink
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  Kids pay the price as Russia swaps proven cystic fibrosis drug for untested one
  In January, Russia forcibly switched children with cystic fibrosis from a proven U.S.-made drug to a “new” treatment that’s never been tested on humans — one that’s supplied by a company with ties to friends of President Vladimir Putin. The reported effects were both immediate and catastrophic: parents say children prescribed the drug are deteriorating even faster than when the disease is left untreated. But doctors are reportedly refusing to document the side effects due to “orders from above.” The independent outlet Okno spoke with parents of cystic fibrosis patients in Russia to understand the impact of the switch — and found that officials are now threatening families for refusing the untested medication. Meduza shares an abridged translation of their report.

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