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    Sheffield Mask Bloc (sheffieldmaskbloc@todon.eu)'s status on Wednesday, 12-Mar-2025 03:42:17 JSTSheffield Mask BlocSheffield Mask Bloc

    "Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to 'crunch' the diseases": https://thesicktimes.org/2025/03/11/accurate-statistics-for-me-and-long-covid-are-vital-thats-why-i-started-a-patient-led-organization-to-crunch-the-diseases/

    In conversationabout 3 months ago from todon.eupermalink

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      Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases.
      from Rory Preston
      Since falling ill with myalgic encephalomyelitis (ME) in 2018, it has frustrated me greatly seeing organizations and especially governments repeating out-of-date statistics related to this disease — minimizing either the apparent number of sufferers (such as the much-repeated 250,000 figure for the number of ME patients in the UK) or our degree of suffering.
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