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Never underestimate the power of being an ally who “simply” validates another person’s experience. You don’t need to be an expert to do this.

Each person I meet who ‘gets’ what ME/CFS is and simply believes me when I describe my experience of it helps me feel stronger when I need to fight for support from Big Systems that default to saying No.

I am not even talking about financial support. I do not have the strength to fight for PIP right now. So I’m talking about reasonable adjustments and support during my university studies from the DSA. It is a slog. The Systems are rigid behemoths.