Embed Notice

Long story short, I may have a second disease and it's even rarer than the rare blood cancer (Langerhan's cell histiocytosis) I got diagnosed with in December 2023. It's called Erdheim-Chester disease, a multi-system disease currently considered a form of non-Langerhan's histiocytosis. I will need two more biopsies performed starting with the lymph node under my left armpit. Chemotherapy is inevitable but we need more molecular data behind what the PET scans flagged in April first and foremost. The journey to remission definitely got complicated and I've had to take a lot of time to process this before sharing on the socials... but I will continue to be brave and fight on. More as I have it. 🙏🏿🫡