One of the most vicious things about living with LCH (Langerhan’s cell histiocytosis) is the onslaught it produces and unleashes in one’s mental health in a completely unprecedented way and how it shows up in ways that seem familiar yet markedly different.
I’ve lost 21 lbs/1.5 st. since the end of December. Suffered a bout of dehydration, which exacerbated the fainting spells I was having as my heart was working double time to get blood to my brain. Radiation treatment went smoothly but chemo is on deck. We just don’t know if we’re going a more generalised treatment route or something more targeted yet.
I’ve clawed and scratched my way back to fitness before during depressive episodes but never with all these complications.