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<blockquote style="position: relative; padding-left: 55px;"><section><a href="https://disabled.social/users/tomkindlon/statuses/111309323729230088">Tom Kindlon (tomkindlon@disabled.social)'s status on Sunday, 29-Oct-2023 16:48:16 JST</a><a href="https://disabled.social/@tomkindlon" title="tomkindlon@disabled.social"><img src="https://gnusocial.jp/avatar/108595-48-20230320061146.webp" width="48" height="48" alt="Tom Kindlon" style="position: absolute; left: 0; top: 0;">Tom Kindlon</a></section><article><p>Sadly Michael VanElzakker posted this on Oct 22 after a similar Covid study came out:</p><p>"I've been recruiting for this same study in ME patients since before the pandemic, but people are not volunteering."</p><p>Please highlight widely 🙏 </p><p><a href="https://a.gup.pe/u/mecfs">@mecfs</a></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" rel="tag">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" rel="tag">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" rel="tag">#MEcfs</a> <a href="https://disabled.social/tags/CFS" rel="tag">#CFS</a> <a href="https://disabled.social/tags/PwME" rel="tag">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" rel="tag">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" rel="tag">#CFSME</a> <a href="https://disabled.social/tags/MEeps" rel="tag">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" rel="tag">#CFIDS</a> <a href="https://disabled.social/tags/SEID" rel="tag">#SEID</a> <a href="https://disabled.social/tags/NeuroME" rel="tag">#NeuroME</a> <a href="https://disabled.social/tags/ME" rel="tag">#ME</a> <a href="https://disabled.social/tags/MyE" rel="tag">#MyE</a> <a href="https://disabled.social/tags/millionsmissing" rel="tag">#millionsmissing</a>  <a href="https://disabled.social/tags/MAssachusetts" rel="tag">#MAssachusetts</a> <a href="https://disabled.social/tags/Boston" rel="tag">#Boston</a> <a href="https://disabled.social/tags/NewEngland" rel="tag">#NewEngland</a></p></article><footer><a rel="bookmark" href="https://gnusocial.jp/conversation/2248361#notice-4429535">In conversation</a><time datetime="2023-10-29T16:48:16+09:00" title="Sunday, 29-Oct-2023 16:48:16 JST">about a year ago</time> <span>from <span><a href="https://disabled.social/@tomkindlon/111309323729230088" rel="external" title="Sent from disabled.social via ActivityPub">disabled.social</a></span></span><a href="https://disabled.social/@tomkindlon/111309323729230088">permalink</a><h4>Attachments</h4><ol><li><label><a rel="external" href="https://gnusocial.jp/attachment/1731189">Study recruiting flyer with the headline “Brain Scan Study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Help us understand if ME/CFS is related to inflammation in the brain. The flyer explains that this study is located at the MAssachusetts General Hospital’s Martinos Center for Biomedical Imaging in Charlestown, MA, with up to 8 hours total of required participation and up to $250 in pay. Participants will provide blood and saliva samples, wear a device while sleeping, answer questions about their health and history, and complete a 1.5-hour PET-MR scanning session. During the scanning session, participants will receive an injection as blood is taken from an arterial catheter in your arm. Some parts of the study may be conducted remotely. This is a study designed to test a specific hypothesis about the cause of ME/CFS. It is not a treatment study.</a></label><br><a href="https://assets.disabled.social/media_attachments/files/111/309/312/971/728/869/original/4496ec6839dd6550.jpg" rel="external">https://assets.disabled.social/media_attachments/files/111/309/312/971/728/869/original/4496ec6839dd6550.jpg</a></li></ol></footer></blockquote>

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Tom Kindlon (tomkindlon@disabled.social)'s status on Sunday, 29-Oct-2023 16:48:16 JST Tom Kindlon
Sadly Michael VanElzakker posted this on Oct 22 after a similar Covid study came out:
"I've been recruiting for this same study in ME patients since before the pandemic, but people are not volunteering."
Please highlight widely 🙏
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing #MAssachusetts #Boston #NewEngland
In conversationabout a year ago from disabled.socialpermalink
Attachments
1. Study recruiting flyer with the headline “Brain Scan Study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Help us understand if ME/CFS is related to inflammation in the brain. The flyer explains that this study is located at the MAssachusetts General Hospital’s Martinos Center for Biomedical Imaging in Charlestown, MA, with up to 8 hours total of required participation and up to $250 in pay. Participants will provide blood and saliva samples, wear a device while sleeping, answer questions about their health and history, and complete a 1.5-hour PET-MR scanning session. During the scanning session, participants will receive an injection as blood is taken from an arterial catheter in your arm. Some parts of the study may be conducted remotely. This is a study designed to test a specific hypothesis about the cause of ME/CFS. It is not a treatment study.
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