Getting weepy about Violet Affleck pointing out that Planet Earth experiences post-exertion malaise, and people with ME/CFS know the hard truths about how to deal with that.
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Sarah dreams of beans (beandreams@friendhole.social)'s status on Monday, 26-May-2025 08:53:24 JST Sarah dreams of beans
- Jay Baker repeated this.
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Sarah dreams of beans (beandreams@friendhole.social)'s status on Tuesday, 27-May-2025 18:50:41 JST Sarah dreams of beans
'Because pwME know that a crash is unpredictable and impossible to reverse, the goal of pacing is to not encounter the symptoms at all. Success is measured not by a fast and furious response at the moment of crisis but by the absence of a need for intervention. But US society, like a new pwME still unfamiliar with the costs of PEM, is staring down a cycle of “crashes” from which we won’t be able to easily return'