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1. Embed this notice
   ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 13-May-2025 03:30:59 JST ahimsa

   💙 It's May 12th, International ME/CFS Awareness Day 💙

   My ME/CFS onset was in Jan 1990
   
   🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

   In this thread I plan to post about 3 main things:

   1. My ME/CFS story (briefly)

   2. Helpful resources for patients and clinicians

   3. Advocacy options for patients & allies (friends/family) - mostly US based

   1/n

   @mecfs @longcovid

   #MEcfs #LongCovid #PostCovid #Disability #DisabilitySOS #CovidIsNotOver #MillionsMissing #MEAwareness #WorldMEDay

   • Embed this notice
     ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 13-May-2025 03:30:58 JST ahimsa

     in reply to

     If you learn nothing else from my thread today, please remember this:

     Exercise is NOT recommended for people with ME/CFS!

     Exercise is not good for anyone who has post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE), and that includes a significant portion of people with Long Covid.

     This video has more info:

     https://www.youtube.com/watch?v=wxSwYUennBA

     3/n

     @mecfs @longcovid

     #MEcfs #PwME #PEM #PESE #LongCovid #MillionsMissing #MEAwareness #WorldMEDay

   • Embed this notice
     ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 13-May-2025 03:30:59 JST ahimsa

     in reply to

     My story, in brief:

     I caught an unknown virus in Dec 1989. I thought I'd recovered but then started getting new symptoms in Jan 1990. In March I went on medical leave.

     Over the next 5 years I went to dozens of doctors but got no diagnosis until 1995. I tried to keep working but finally got too sick to work in 2000.

     Pushing myself all those years led to a permanent worsening of my condition.

     Not a good idea! 😔

     2/n

     @mecfs @longcovid

     #MEcfs #PwME #MillionsMissing #MEAwareness #WorldMEDay

     GreenSkyOverMe (Monika) repeated this.