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   Mother Bones (_l1vy_@mstdn.social)'s status on Tuesday, 22-Apr-2025 13:09:05 JST Mother Bones

   #Via Alexander Tin / alexander-a-tin
   Apr 21, 2025, 6:06 PM

   "We're learning more about NIH's plans for Secy Kennedy's new autism studies.

   NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data."

   https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/

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     Mother Bones (_l1vy_@mstdn.social)'s status on Tuesday, 22-Apr-2025 13:09:03 JST Mother Bones

     in reply to

     #Via Danielle Froom 🏳️🌈 / danifroom
     April 21, 2025 at 7:43 PM

     "So, using private medical data to compile a list of undesirables?

     Everyone needs to internalize that when they say they want to 'eliminate autism' what they mean is 'eliminate autistic people and their families.' "

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     Mother Bones (_l1vy_@mstdn.social)'s status on Tuesday, 22-Apr-2025 13:09:04 JST Mother Bones

     in reply to

     #Via Alexander Tin / alexander-a-tin
     Apr 21, 2025, 7:51 PM

     "NIH's Bhattacharya said this new 'data platform' will aim for 'broad coverage' of U.S. population.

     He promised 'state of the art protections' for patient privacy and said Secy Kennedy's autism researchers won't download data."

     https://tinalexander.github.io/notes/2025/04#jay-bhattacharya-on-autism-research-plans

     Blaise Pabón - controlpl4n3 repeated this.