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1. Embed this notice
   ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 15-Apr-2025 06:37:52 JST ahimsa

   I think I've already posted this but it's worth re-posting:

   "Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"

   https://www.salon.com/2025/04/01/admins-on-chronic-disease-research-abandons-long-and-mecfs-patients-again/

   "Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS"

   @mecfs @longcovid

   #LongCovid #MEcfs #Research

   • Embed this notice
     ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 15-Apr-2025 06:37:51 JST ahimsa

     in reply to

     I encourage patients and allies who are feeling discouraged to join the Millions Missing 2025 campaign:

     https://www.meactions.org/millionsmissing2025

     The SOS theme = "Save our support systems. Save our science. Save our society."

     The main event is a protest on May 12 in Washington, DC. There'll be smaller events across the US. Or schedule a meeting with your local congress rep

     Can't attend in person? Join in online on May 12

     See the link for lots more ideas

     #MEcfs #LongCovid #MillionsMissing #MEAction #Resist

   • Embed this notice
     ahimsa (ahimsa_pdx@disabled.social)'s status on Tuesday, 15-Apr-2025 06:37:52 JST ahimsa

     in reply to

     Encouraging quote from Jamie Seltzer of #MEAction -

     “MECFS researchers and advocates have been managing to do the impossible with next to nothing, and we will continue to do so ...

     So for all of those folks with long COVID out there who are looking at this and feeling in despair, we have been here before and we have persisted …

     We are unlikely to snap our fingers and find a cure, but that was always true, and advocates are going to keep fighting.”

     #LongCovid #MEcfs #HealthCare #Resist

     👩‍🦯The Blind Fraggle repeated this.