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ahimsa (ahimsa_pdx@disabled.social)'s status on Sunday, 09-Feb-2025 15:40:23 JST ahimsa

From The Sick Times:
“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
https://thesicktimes.org/2025/02/04/really-pissed-off-cochrane-receives-backlash-from-advocates-and-experts-after-abandoning-me-cfs-review/
“I think patients are disappointed but not surprised, because they’re pretty used to being given the run-around by the authorities"
@mecfs
#MEcfs #LongCovid #Cochrane #Exercise #Research #PEM
In conversation about 2 months ago from disabled.social permalink
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1. Key points you should know: - Cochrane produces systematic reviews of medical interventions that are influential for clinicians seeking to provide evidence-based care. - A 2019 review controversially recommended exercise therapy for ME/CFS, despite questions about the quality of the evidence and the experiences of people with the disease. - Cochrane acknowledged problems with the review and promised a complete update, then abruptly dropped the update project in December 2024. - The situation has sparked sharp criticism of Cochrane from ME/CFS advocates and researchers. - An online petition seeking withdrawal of the 2019 review has attracted more than 15,000 signers.
  https://assets.disabled.social/media_attachments/files/113/947/042/994/276/897/original/7208756041d3401b.png

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