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1. Embed this notice
   Paul Cantrell (inthehands@hachyderm.io)'s status on Friday, 31-May-2024 01:38:02 JST Paul Cantrell

   Vast, high-N, longitudinal studies of health trends can be a truly good use the kind of data that ubiquitous personal devices can collect.

   Wouldn’t it be beautiful if we lived in a world where stringent, agressively enforced privacy law let us feel unequivocally good about the collection of this kind of data, knowing it is tightly monitored, anonymized at the source, and never ever ever misused? Wouldn’t that just be wonderful?
   https://mastodon.social/@arstechnica/112530947654690520

   • Matthew Lyon repeated this.
   • Embed this notice
     Paul Cantrell (inthehands@hachyderm.io)'s status on Friday, 31-May-2024 01:41:34 JST Paul Cantrell

     in reply to

     I want a world where whenever some creep-ass Republican politician working to criminalize abortion demands data from period tracking apps so they can hunt down marginalized teenagers who got pregnant, the response is, “The technology makes that impossible, and federal law makes it so you’ll go to prison if you try.“

   • Embed this notice
     Paul Cantrell (inthehands@hachyderm.io)'s status on Friday, 31-May-2024 01:44:27 JST Paul Cantrell

     in reply to

     And just to be clear, it is well within the realm of possibility to write such code and (I think) such law. Neither the technical nor the legal is the obstacle here.

     This is a political problem, in the broad sense of “political,” i.e. what people believe, which people have power, and how are society as a whole makes collective decisions.

   • Embed this notice
     Paul Cantrell (inthehands@hachyderm.io)'s status on Friday, 31-May-2024 05:59:48 JST Paul Cantrell

     in reply to

     • Fish Id Wardrobe

     @fishidwardrobe
     It’s certainly an effort in the right direction.

   • Embed this notice
     Fish Id Wardrobe (fishidwardrobe@mastodon.me.uk)'s status on Friday, 31-May-2024 05:59:49 JST Fish Id Wardrobe

     in reply to

     @inthehands I'm going to argue that GDPR is more than half-way to such a law --- if enforced aggressively enough.

   • Embed this notice
     Paul Cantrell (inthehands@hachyderm.io)'s status on Friday, 31-May-2024 07:39:53 JST Paul Cantrell

     in reply to

     • Avi Rappoport (avirr)

     @avirr
     Agreed, and also published medical research has very high ethical standards — standards of the sort that I wish were required of the private research and data mining that corporations do with all the sensitive data they hold.

   • Embed this notice
     Avi Rappoport (avirr) (avirr@sfba.social)'s status on Friday, 31-May-2024 07:39:54 JST Avi Rappoport (avirr)

     in reply to

     @inthehands It’s an important topic and worth researching. I read the article and it’s all opt-in and fully disclosed. I know that Apple has a good record on user info so everything that can be encrypted locally is. I’m sure they’ve tried to think through all the problems but there’s always something.