Conversation

It's now 4 years of having #LongCovid. My health has increasingly deteriorated over this time as more symptoms appeared, existing symptoms intensified. These include: crushing fatigue, headaches, fevers, nerve pain, nausea, brain fog, breathing problems, sore throats, dizziness, body pain, chest pain... I no longer work. I'm housebound and need a wheelchair for journey's outside and even then suffer from the experience. I've had a tour of health departments from neurology to cardiology, with this ongoing. I miss reading books. I get upset when I have ideas of things I want to do and then remember I don't have the spoons for it. Gaslighting, minimising and marginalisation from medical spaces and family/friends has been hard, but finding an online community has helped me so much, including by being a better advocate. I've especially found the #MECFS community very helpful - so many people with #LongCovid also meet the definition of ME/CFS (I am currently waiting on an official diagnosis for ME/CFS) and I think it is important the interconnections between the communities alongside the long-term harm and abuse the ME/CFS community has faced be highlighted today, and everyday, too. #MaskUp because #CovidIsNotOver

#LongCovidAwarenessDay