Anti.:fuck_verify:In May of 2020 i went to see my MD, about these strange, persistent symptoms i had been experiencing since an unknown (yet suspiciously familiar sounding) infection in early march. First he told me, it's just your asthma that got worse, use more asthma spray. A few weeks later after things got even worse he told me, it's just panic attacks, here have some Benzos. Side note: These Benzos are not at all recommended for use with asthma. But nvm.
Through online contacts i found out that it might have #LongCOVID.
My contacts to medical doctors have not improved much since then, they ~kind of~ believe me. ~But the data does not confirm that anything is wrong with you~.
As a consequence i have stopped expecting anything from medical doctors and instead started avoiding them as best as i can. My only hope is for a test, that at some point will prove my illness. Until then, they can fuck right off and just write me the prescriptions i need.
But when i read about what seems to start happening (or rather keeps happening?) in certain health care settings now, it makes me so sad and angry. More than 3 and half years after LongCOVID has been named by patient groups, they are now telling people to just 're-frame it in their brains'. ~Just start working again and see how this will fix things for you~. As if. There is also a type of person, who was lucky enough to get cured after having LongCOVID, then turns into the worst proponent of preachy self-righteousness out there. Just stfu.
The problem with this illness is that what works for one person might be the worst idea for another. It will require a level of individualized care that the medical establishment simply cannot provide. More urgent than ever do we need to build radical and robust communal care structures. The best possible help will come from there.
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