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   alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:07:23 JST alex :disabled_knife:

   lmao not the guardian citing team PACE / Wessely school biopsychosocial cliquists Chalder and Garner to say that NICE was wrong to disrecommend exercise therapy for a condition characterised by exertion intolerance. let it go dudes!!!

   • goatsarah repeated this.
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     alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:08:08 JST alex :disabled_knife:

     in reply to

     one really important thing about this is that they're already trying to attach themselves into the early stages of Long Covid research, since Long Covid is probably ME/CFS. they are absolutely already pushing for Cognitive Behavioural Therapy and Graded Exercise Therapy to be the main and only treatments for post-viral sequelae of SARS-COV-2. and that's popular with the private interests that will soon replace the NHS, because those treatments are cheap. but also they don't work.

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     alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:08:09 JST alex :disabled_knife:

     in reply to

     and they've still not let it go! they have the backing of the Science Media Centre, one of the reactionary freespeech orgs to grow out of the Living Marxism cult (same as Spiked). they have the backing of the Tory government (see arch-cliquist Professor Sir Simon Wessely's career trajectory). basically any time they like they can call up the Guardian or Today and have a slot to whinge about how they're being persecuted by irrational patient activists.

     goatsarah repeated this.
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     alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:08:10 JST alex :disabled_knife:

     in reply to

     when NICE revised its treatment guidelines for ME/CFS, it finally dropped the PACE trial recommendations, on the basis that all its evidence were of low or very low quality. the NICE review process was exactly the same as it always is. however the PACE clique launched several unprecedented obstructions, having people removed from the panel, then having the new guideline release delayed, then rallying several UK insitutions to sign letters saying they wouldn't adhere to the new guidance

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     alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:08:11 JST alex :disabled_knife:

     in reply to

     many of this clique were involved the PACE trial. it's the *only* study that purports to show that exercise "cures" ME/CFS, a condition characterised by all symptoms worsening in response to activity. it was, unprecedentedly, funded by the UK Department for Work and Pensions + other private health insurers. it also infamously altered its criteria for "recovery" mid-way through, to the degree that many participants would have retroactively met the recovery criteria before even starting.

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     alex :disabled_knife: (alex@godforsaken.website)'s status on Tuesday, 11-Jul-2023 19:08:12 JST alex :disabled_knife:

     in reply to

     there's like 5 or 6 doctors in the UK who are absolutely invested in the idea of ME/CFS as a "biopsychosocial" condition that can be treated by talking therapy and a bit of exercise, and they are absolutely guaranteed a slot in any mainstream outlet of their choosing any time they want to whinge about how they've been hard done by, and how everyone else but them is wrong. it's so weird!!! it is *always* one of these 5 or 6 doctors btw. no one else does this.