Slides showing that only 5.4% of people in England have opted out of the secondary use of their medical records.
https://eupolicy.social/system/media_attachments/files/111/810/187/457/652/283/original/d8cfc243ad511551.jpg
Interesting how in #England, only very few patients actually use their opt-out right for secondary medical data use.
Reasons according to Nicola Hamilton on the #PrivacyCamp24 panel: People don't know about their right. And defaults matter.
A consent requirement for secondary use in the #EHDS would have been so much fairer. 🤷
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