The bad news is that the backlog to the facility is $1600.
And this month has also brought an extra-high mortgage bill, (about $1200 is my share) so I somehow have to find a total of $4800.
The bad news is that the backlog to the facility is $1600.
And this month has also brought an extra-high mortgage bill, (about $1200 is my share) so I somehow have to find a total of $4800.
The good news is, I don’t have to pay the bulk of the $30,000 it costs per month for the infusion alone, insurance is covering the cost.
They have a co-pay assistance program helping with the per session fees, I have reached my deductible,
and if I can clear the remaining backlog of the portion I owe directly to the facility,
I have only $2000 left that has to be paid in cash.
Just as six years ago, I am allergic to my treatment. Not enough to not receive it. But we had to go slowly. I tried for the third time not to receive the steroid, as it complicates my recovery.
However we could not avoid it, or the slight bump it added to the cost.
This time around I was in the oncology center for 8 hours. As you can see in the second picture, the IV was connected through my hand.
On the other I had to have my blood pressure monitored for the third time in a row.
(Pictures from posts in next post)
Thank you so much. For your well wishes, your donations and your help sharing my story, especially on Facebook, Mastodon, and the birdchan formerly known as Twitter.
As you may already know. Monday was my third rounds of infusions at the oncology center- chemotherapy I jokingly call baby unicorn tears.
I’ll share a recent update to my GFM below, with links to other options for sending donations.
Thank you again for your help.
Every time I miss a treatment, the cancer advances fast enough to go to the last stage.
The only reason I miss chemo is not being able to pay for what I need to go.
This is the 5th chemo treatment, not counting the most recent chemo pill treatment which I am STILL ON.
These are not common “cost plus drugs” meds.
If this fails I can’t afford the last option.
(Update: I found enough work to cover $1200, received another $1481 in Juneteenth donations/other payments, so $2119 is left to get before I’m due back for more infusions.)
I need a week just to recover but I don’t see a way to do it. If I work I can probably come up with half of it, doing workshops, selling memberships, ebooks and course.
If you’re able to help I’ll be very grateful. The treatment seems to be working better the more I rest. I really shouldn’t be working at all. And I know I’m risking not recovering, and thus my life, by rushing back to work every month.
Thank you especially to those who went out of your way to help me and send donations because you hadn’t heard from me in a while.
I appreciate your help so much and I really cannot continue to survive without you.
Salutations community of dystopia, thank you for continuing to save my life.
I come to you to ask for your help as I do monthly
& for help with unexpectedly high medical bills for cancer, co-pays, Long COVID & related bills.
If you can, please help me continue to afford baby unicorn tears infusions.
This is the 5th attempt to stop this cancer.
Please help because you’re my last hope.
https://account.venmo.com/u/TinuWrites
https://Ko-fi.com/TinuWrites
This is my main care facility and I no longer have credit cards to put these totals on.
In addition, one of the side effects of the oral part of my chemo regimen causes joint pain.
I had it mildly before. But today it’s so bad that I can’t lift my arms high enough to change clothes without help.
It’s the younger twins birthday. I can’t even hug my birthday boys.
And I definitely cannot do any of the active fundraising activities that might boost my results.
2/7
1 /7 parts
“Thank you for all of your help. In the last week I have gone from $1800/$6k to $2350/$6000.
That’s including the only donation I got yesterday, $25 from a wonderful friend.
Another deadline has passed.
So another late fee is included. I attached screenshots, so you can see the kind of bills I’m dealing with.
(One of them is a cell phone bill, we have two sets of twins 😂)
And these are the bills that haven’t gone into collections.
From
But in reality those smaller donations often add up to even more when 100 people are doing them!
So please, any amount you can spare. I am desperate to get out of this cycle of getting further and further behind on bills.
I never get to have the rest that is supposed to make me better. I know people think that’s just something people say.
There’s no way I can raise $100k a month by myself and stay alive.
Please help get me back to being stable if you can.
4/7
Please help me with even a small donation if you can.
You might think $5/ $15/$25/$50 doesn’t matter as much as the amazing $5k and $10k donations.
3/7
Friends. I’m already being attacked in public for having a mask on. Mask bans, despite so-called exemptions, will make this worse.
All of us love someone with cancer whose immune system needs extra protection. One way masking is already not enough.
Instead of respecting the science, we are being mistreated, pushed, physically attacked, and challenged.
Please help safeguard the right to prevent allergies, dust, wildfire smoke and disease.
Tell your officials you don’t want laws to remove this right in your states.
Update on my current situation.😪 :blobsweats:
Last week I came to you for help. I try to only do it monthly.
But I am beyond desperate & my pride will have to take a hit.
I’m asking- if you like my writing about changing the world-
if you’ll help me rebuild at https://Patreon.com/Tinu.
& if you can join at the $25 level you get
- a tee shirt
- a hoodie
- a tote &
- a mug.
Next post has details about my health & why I need so much help.
If you're unable to donate, please share. I'll be back with other updates, or news or something that makes this interesting.
Here's last month's thread if you'd like more backstory.
Long story short, I avoided chemo infusions for two years with oral chemo meds.
But I couldn't afford to keep it in my body. Fell short of fundrasing goals after trying so many other options.
I now have no other options. And only one other treatment if this fails, if I can afford it, because it's not covered.
THIS HAS TO WORK.
Good day to you, fellow comrades in the resistance to fascism.
I come to you once more, to ask for your assistance
in defraying the costs of beating Leukemia with a monthly infusion
of baby unicorn tears.
Here's some photos of the fun times I had at chemo. I can accept your generous help via the links below.
I'm that Tinu. Yes her (her her her). Take a pic it’s me (me me me). ♥️ My name means Love.My date of sign up says 2016 but I have been a lurker until the 2022 #TwitterMigration.I've been a digital community organizer who specializes in coordinating #MutualAid for disabled people via group fundraising & events. I attempted to exist outside capitalism after a 20 year career in digital marketing, which ended when I was hospitalized for #COVID19 & cancer. I never recovered.
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