The MRI results were mixed, as things go. Doctors want to rule out lupus myelopathy, a rare condition that attacks the spinal cord and only has a 50% treatment success rate.<\/p>
No visible signs of distress on the MRI would have upped the probability of lupus myelopathy, so \"nothing wrong\" would have been bad news.<\/p>
But the something that did show up (stenosis at L2-L4) doesn't quite explain all the symptoms, so appointments with neurosurgeon and pain management up next!<\/p>","generator":{"id":"tag:gnusocial.jp,2026-04-05:notice-source:ActivityPub","objectType":"application","status_net":{"source_code":"ActivityPub"}},"id":"https:\/\/wandering.shop\/users\/jkirkendall\/statuses\/116138190859029532","object":{"id":"https:\/\/wandering.shop\/users\/jkirkendall\/statuses\/116138190859029532","objectType":"note","content":"
The MRI results were mixed, as things go. Doctors want to rule out lupus myelopathy, a rare condition that attacks the spinal cord and only has a 50% treatment success rate.<\/p>
No visible signs of distress on the MRI would have upped the probability of lupus myelopathy, so \"nothing wrong\" would have been bad news.<\/p>
But the something that did show up (stenosis at L2-L4) doesn't quite explain all the symptoms, so appointments with neurosurgeon and pain management up next!<\/p>","url":"https:\/\/wandering.shop\/@jkirkendall\/116138190859029532","status_net":{"notice_id":null}},"to":[{"objectType":"http:\/\/activitystrea.ms\/schema\/1.0\/collection","id":"http:\/\/activityschema.org\/collection\/public"}],"status_net":{"conversation":"tag:gnusocial.jp,2026-02-26:objectType=thread:nonce=cc68c65129c2e300","notice_info":{"local_id":"12195794","source":"ActivityPub"}},"published":"2026-02-26T18:56:51+00:00","provider":{"objectType":"service","displayName":"GNU social JP","url":"https:\/\/gnusocial.jp\/"},"verb":"post","url":"https:\/\/wandering.shop\/@jkirkendall\/116138190859029532"},{"actor":{"id":"https:\/\/mstdn.social\/users\/nomdeb","displayName":"Nomdeb","status_net":{"avatarLinks":[{"url":"https:\/\/gnusocial.jp\/avatar\/25890-original-tmp20221125210747.webp","rel":"avatar","type":"image\/webp","width":400,"height":400},{"url":"https:\/\/gnusocial.jp\/avatar\/25890-96-20221216211136.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},{"url":"https:\/\/gnusocial.jp\/avatar\/25890-48-20221216211136.webp","rel":"avatar","type":"image\/webp","width":48,"height":48},{"url":"https:\/\/gnusocial.jp\/avatar\/25890-24-20221216211136.webp","rel":"avatar","type":"image\/webp","width":24,"height":24}],"profile_info":{"local_id":"25890"}},"image":{"url":"https:\/\/gnusocial.jp\/avatar\/25890-96-20221216211136.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},"objectType":"person","summary":"Insatiably curious. Lover of language. Fascinated by patterns. Gets lost down rabbit holes. A trifle geeky and rebellious. How does it work? Why? Loves animals, music, art. World Citizen (Lived in India, Iran, Lebanon, UK, now USA)\u2029Current obsessions: 25k+ photo & ancestry mash up project (year 1900+ and NE Tribal India), and home makerspace & laser cutting design. AND Pachyderms. :)\u2029Onwards and upwards towards the world we could be. Be a strong voice for the voiceless. She\/her.","url":"https:\/\/mstdn.social\/@nomdeb","portablecontacts_net":{"preferredUsername":"nomdeb","displayName":"Nomdeb","note":"Insatiably curious. Lover of language. Fascinated by patterns. Gets lost down rabbit holes. A trifle geeky and rebellious. How does it work? Why? Loves animals, music, art. World Citizen (Lived in India, Iran, Lebanon, UK, now USA)\u2029Current obsessions: 25k+ photo & ancestry mash up project (year 1900+ and NE Tribal India), and home makerspace & laser cutting design. AND Pachyderms. :)\u2029Onwards and upwards towards the world we could be. Be a strong voice for the voiceless. She\/her."}},"content":"
@jkirkendall<\/a> Ugh. I'm so sorry you have to go through all of this and don't yet have an answer. And may it be a more treatable and good answer when you do get it.<\/p>","generator":{"id":"tag:gnusocial.jp,2026-04-05:notice-source:ActivityPub","objectType":"application","status_net":{"source_code":"ActivityPub"}},"id":"https:\/\/mstdn.social\/users\/nomdeb\/statuses\/116138291680840742","object":{"id":"https:\/\/mstdn.social\/users\/nomdeb\/statuses\/116138291680840742","objectType":"note","content":" @jkirkendall<\/a> Ugh. I'm so sorry you have to go through all of this and don't yet have an answer. And may it be a more treatable and good answer when you do get it.<\/p>","url":"https:\/\/mstdn.social\/@nomdeb\/116138291680840742","status_net":{"notice_id":null},"inReplyTo":{"objectType":"note","id":"https:\/\/wandering.shop\/users\/jkirkendall\/statuses\/116138190859029532","url":"https:\/\/wandering.shop\/@jkirkendall\/116138190859029532"}},"to":[{"objectType":"http:\/\/activitystrea.ms\/schema\/1.0\/person","id":"https:\/\/wandering.shop\/users\/jkirkendall"},{"objectType":"http:\/\/activitystrea.ms\/schema\/1.0\/collection","id":"http:\/\/activityschema.org\/collection\/public"}],"status_net":{"conversation":"tag:gnusocial.jp,2026-02-26:objectType=thread:nonce=cc68c65129c2e300","notice_info":{"local_id":"12195795","source":"ActivityPub"}},"published":"2026-02-26T18:56:50+00:00","provider":{"objectType":"service","displayName":"GNU social JP","url":"https:\/\/gnusocial.jp\/"},"verb":"post","url":"https:\/\/mstdn.social\/@nomdeb\/116138291680840742"},{"actor":{"id":"https:\/\/wandering.shop\/users\/jkirkendall","displayName":"Jon","status_net":{"avatarLinks":[{"url":"https:\/\/gnusocial.jp\/avatar\/87585-original-tmp20250702005601.webp","rel":"avatar","type":"image\/webp","width":400,"height":400},{"url":"https:\/\/gnusocial.jp\/avatar\/87585-96-20250706190005.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},{"url":"https:\/\/gnusocial.jp\/avatar\/87585-48-20250703010903.webp","rel":"avatar","type":"image\/webp","width":48,"height":48},{"url":"https:\/\/gnusocial.jp\/avatar\/87585-24-20250706190005.webp","rel":"avatar","type":"image\/webp","width":24,"height":24}],"profile_info":{"local_id":"87585"}},"image":{"url":"https:\/\/gnusocial.jp\/avatar\/87585-96-20250706190005.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},"objectType":"person","summary":"Grew up in Beirut and Tehran. Knitter, potter, meditator. Severe hearing loss and making friends with silence. Living with #lupus. Trauma therapist. Married to the lovely @ScottPerkins \ud83c\udff3\ufe0f\u200d\ud83c\udf08 #BLM #TransRights","url":"https:\/\/wandering.shop\/@jkirkendall","portablecontacts_net":{"preferredUsername":"jkirkendall","displayName":"Jon","note":"Grew up in Beirut and Tehran. Knitter, potter, meditator. Severe hearing loss and making friends with silence. Living with #lupus. Trauma therapist. Married to the lovely @ScottPerkins \ud83c\udff3\ufe0f\u200d\ud83c\udf08 #BLM #TransRights"}},"content":" @nomdeb<\/a> It's ok - the neurosurgeon is one of the top in the DC area and I'm so psyched that I was able to get an appointment in March! I honestly thought it would be June before they had an opening. I do feel like I have a path forward, and that is giving me hope!<\/p>","generator":{"id":"tag:gnusocial.jp,2026-04-05:notice-source:ActivityPub","objectType":"application","status_net":{"source_code":"ActivityPub"}},"id":"https:\/\/wandering.shop\/users\/jkirkendall\/statuses\/116138403380153028","object":{"id":"https:\/\/wandering.shop\/users\/jkirkendall\/statuses\/116138403380153028","objectType":"note","content":" @nomdeb<\/a> It's ok - the neurosurgeon is one of the top in the DC area and I'm so psyched that I was able to get an appointment in March! I honestly thought it would be June before they had an opening. I do feel like I have a path forward, and that is giving me hope!<\/p>","url":"https:\/\/wandering.shop\/@jkirkendall\/116138403380153028","status_net":{"notice_id":null},"inReplyTo":{"objectType":"note","id":"https:\/\/mstdn.social\/users\/nomdeb\/statuses\/116138291680840742","url":"https:\/\/mstdn.social\/@nomdeb\/116138291680840742"}},"to":[{"objectType":"http:\/\/activitystrea.ms\/schema\/1.0\/person","id":"https:\/\/mstdn.social\/users\/nomdeb"},{"objectType":"http:\/\/activitystrea.ms\/schema\/1.0\/collection","id":"http:\/\/activityschema.org\/collection\/public"}],"status_net":{"conversation":"tag:gnusocial.jp,2026-02-26:objectType=thread:nonce=cc68c65129c2e300","notice_info":{"local_id":"12195797","source":"ActivityPub"}},"published":"2026-02-26T18:56:49+00:00","provider":{"objectType":"service","displayName":"GNU social JP","url":"https:\/\/gnusocial.jp\/"},"verb":"post","url":"https:\/\/wandering.shop\/@jkirkendall\/116138403380153028"},{"actor":{"id":"https:\/\/sfba.social\/users\/jeridansky","displayName":"Jeri Dansky","status_net":{"avatarLinks":[{"url":"https:\/\/gnusocial.jp\/avatar\/17650-original-tmp20250809030907.webp","rel":"avatar","type":"image\/webp","width":400,"height":400},{"url":"https:\/\/gnusocial.jp\/avatar\/17650-96-20250809033821.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},{"url":"https:\/\/gnusocial.jp\/avatar\/17650-48-20250809033821.webp","rel":"avatar","type":"image\/webp","width":48,"height":48},{"url":"https:\/\/gnusocial.jp\/avatar\/17650-24-20250809033821.webp","rel":"avatar","type":"image\/webp","width":24,"height":24}],"profile_info":{"local_id":"17650"}},"image":{"url":"https:\/\/gnusocial.jp\/avatar\/17650-96-20250809033821.webp","rel":"avatar","type":"image\/webp","width":96,"height":96},"objectType":"person","summary":"Retired professional organizer (the clutter-clearing type); retired editor. Feminist. Cat owner. Jewish atheist. Pro-union. Pro-vaccination, masking and ventilation\/filtration. Owner\/moderator of my local freecycle group. All photos by me unless otherwise noted. Daily flower photos are blooms seen at my local farmers market.Header photo: A large black Maine Coon cat looks at a computer screen.Avatar: My current cat, Tennessee#nobridge","url":"https:\/\/sfba.social\/@jeridansky","portablecontacts_net":{"preferredUsername":"jeridansky","displayName":"Jeri Dansky","note":"Retired professional organizer (the clutter-clearing type); retired editor. Feminist. Cat owner. Jewish atheist. Pro-union. Pro-vaccination, masking and ventilation\/filtration. Owner\/moderator of my local freecycle group. All photos by me unless otherwise noted. Daily flower photos are blooms seen at my local farmers market.Header photo: A large black Maine Coon cat looks at a computer screen.Avatar: My current cat, Tennessee#nobridge"}},"content":"